What We Do

Host Family Forums – We provide an environment for families to increase their knowledge of this disease, as well as to learn their rights in dealing with physicians and hospitals as they seek proper care.

Outreach and Education – Our members participate in community forums, health fairs, and outreach meetings and speak to organizations and churches throughout the Bay Area.

Support Group – We provide support groups for adults living with sickle cell disease and parents of children with sickle cell disease, covering a variety of topics that impact sickle cell disease.

Speakers Bureau – Our board members are available to speak to groups of all types on the status of care, current treatment alternatives, and the general complexities of sickle cell disease.

Youth Transition Workshops – The SCCAC provides workshop topics that cover education, careers, and independent living skills that foster a positive transition from pediatric care to adult care.

Medical Staff Training – We conduct presentations and teaching sessions with health care professionals at hospitals, including nurses and emergency room specialists/attendants, on attitudes of patients and means of providing better service delivery.